Tag Archive | Trust

Grieving and living

It has been five weeks since Steve went to be with the Lord and I miss him every single day. Part of me wants him back but another part knows that he is better off where he is and I need to try to begin again. It is very difficult. there are constant reminders of our life together and the continuing empty places I stumble across that can only be filled with his presence.

I’ve been doing a lot of thinking.. I have so much time alone that I can’t run from my thoughts and feelings.. a mixed blessing.. How do I grieve and still live? A big question when you lose your spouse, best friend and your biggest fan. I don’t know the answer since I am learning how to do this every single day.

There are very sad moments and lonely days. There are difficult nights and early mornings that seem endless. My mind entertains way too many thoughts about the future.. everyone tells me to stay in the present.. that is very hard when the present is so far from what I wish it was.. yet I see the wisdom in that advice.. I also know I need to believe that the future is going to be better than the present..

I had a conversation with someone who seemed to want to convince me that a better future might never come.. that some things never change.. that we need to be prepared to accept the present even if we are unhappy and longing for something more. That conversation was very hard.. it seemed to undermine everything I believe about God.

The God I know is always doing a new thing. He is a God filled with love for His children. He puts desires in our hearts because He wants us to ask for things and then believe that He will come through and answer us. He is the redeemer. He takes what is meant for evil and turns it into something good. His ways are not our ways. He is always for us.. ahead of us, preparing the way for us. This is the God of Romans 8:28.. He takes all things and uses them for good in our lives.. ALL THINGs.. He will do much more than we could ever ask or imagine and we will see His goodness in the land of the living.

He rescues us.. searches for us.. pursues us. His heart is for us and His plans for us are for our good and He will never harm us. My life is proof of this. God is not in a box that we create.. He has more for us than living in our own small sad stories.. There is a larger story and He is the hero of that story.. coming to save and restore us over and over again.

So.. yes I am grieving and sad and lonely.. but God is with me and for me and will surprise me with things that I can’t even dream about right now. He has collected all my tears and He weeps with me.. I trust Him fully and will continue to believe that He is in this season with me and that He will deliver me when it is time.

I pray that from his glorious, unlimited resources he will empower you with inner strength through his Spirit.  Then Christ will make his home in your hearts as you trust in him. Your roots will grow down into God’s love and keep you strong.  And may you have the power to understand, as all God’s people should, how wide, how long, how high, and how deep his love is.  May you experience the love of Christ, though it is too great to understand fully. Then you will be made complete with all the fullness of life and power that comes from God.

 Now all glory to God, who is able, through his mighty power at work within us, to accomplish infinitely more than we might ask or think.

( Ephesians 3: 16-20)

Sweet Sorrow

 

It has been a week since my wonderful husband fell into the arms of Jesus. I miss him every minute of every day but I am so thankful the struggle and suffering are over. This grief that surrounds me now is a sweet sorrow. We had a very good marriage and I never doubted for a minute that the Lord put us together. He was the first person to show me the unconditional love that I needed to experience to truly understand the Father’s love and be able to receive it. What a gift. I always think of him as the balm of Gilead on all the wounds I received before I met him.

Steve was a man of few words, but when he spoke.. he said something worth saying. I learned what the phrase ” action speaks louder than words” really means from this man. He loved me deeply and showered me with that love even when I knew I did not deserve it. I adored him and thankfully because I was widowed 21 years ago, I never let him forget that I loved him and checked in regularly to make sure he knew it. It is too late once someone is gone ..

When Steve began to get sick the first thing to go was language.. the one thing that he struggled with all his life. As time went on the dementia slowly progressed and robbed him of everything until at the end he was bedridden and unable to do anything for himself. It is a ruthless disease. He went into the hospital in early Sept of 2019 and then a month later was admitted to skilled nursing.

This last year was  so challenging for both of us , but in the midst of it I saw God move over and over on our behalf. He was placed in the best skilled nursing in the county.. close to where I lived with the most caring people you could ever hope to meet. I went to see him every day for months until Covid struck our country. I  continually prayed that he would know me .. many people don’t remember their loved ones. As long as he was able to communicate at all. I would tell him I loved him and he would tell me he loved me. He never forgot me and was always glad to see me even when he became very disabled. Many believers came through this life as his journey progressed. I was locked out of the facility for 2 months and suddenly with no real explanation they let me back in.. I was the only person I knew in Marin who was able to visit someone in skilled nursing.

I spent as much time as I could over the last 4 months just being with him.. playing music.. praying and reading to him. It was a privilege to be in there and to walk with him to the end. I had Hospice support for 6 months,, but because of Covid they were locked out.. three wonderful workers talked with me each week on the phone and helped me survive.. it was a lonely road.. The grief of the last year was complicated.. I wanted it to end so he would not suffer… but wanted him to live as long as possible.. the only thing I could do was pray and tell the Lord that it was up to Him and not me.. and that I would give to Steve until he was released from this world and went to be with the Lord. He died peacefully and I had a vision of the angels coming for him  the morning he passed on.. God has provided for me in every way during this trial and continues to provide each and every day as I lean on Him for strength and courage to continue.

Thank you for reading my story and I pray that the Lord uses this to build your faith and helps you as your trust Him.

Shelter in Place

 

 

I actually cannot remember using that phrase before about 4 months ago. There was never a time when I thought for even one minute we would be using it every day and doing it for months. So here we are and we have been sheltering for 4 months.. limiting our contact with other people by staying home and when we go out we wear masks and stay 6 feet apart as much as possible.

The world has turned upside down and may stay that way for a long time.. no one can say that we will ever return to what we called normal. It is going to take time to see what this virus does next and what the reaction to this virus has done to us. I don’t know about you but what I miss the most is hugs and smiles.. Two very important ways we connect with one another have been taken away.. it is a huge loss for me. Thankfully I have a few people in my family I can hug and we can be around one another without masks and smile at each other.. but I miss smiling at strangers and hugging people that I don’t see very often.. expressing the joy that the Lord gives us for one another .

So I long for the good old days when we were not afraid of each other.. when we did not see continual bad news about this virus every single day for months.. I continue to hope for a time when we can relax more and enjoy life in a way that is not possible now.

I wonder how God is at work in this mess. Did He create this virus? I don’t believe He did because it is evil and He is not the creator of evil.. but yes, He has allowed it to exist and chosen not to stop it from spreading.. something that happens in this fallen world on a regular basis.. One thing I know is that He will bring good out of this because His word promises this. Sometimes I get glimpses of good things that are happening right now.. families are spending more time together.. people seem to be more polite and aware of each other out in public.. parents are getting to know their children in deeper ways. We are all learning to entertain ourselves in new ways because things we used to do are gone. Many people are exercising and cooking more.. focusing on being healthy in new ways. Some people are able to work from home and will never have to commute again.. taking stress out of their lives and we end up with cleaner air. Some parents will continue to home school their children because they find that everyone benefits from being together instead of spending long hours in the classroom.

Probably the biggest gain I see is that we are all less busy. We have more time to be alone and more time to connect with the Lord.. I realize that not everyone is taking advantage of this .. they may decide to continue to have busy lives by being on Zoom  and the phone as much as possible..That is too bad.. because my deepest feeling is that the Lord wants time with each one of us.. it may be even more important than going to church or spending time with friends. He longs for us to come to Him with all our broken dreams.. disappointments.. losses and sadness so He can apply the balm of Gilead on these wounds. It is our choice .. He will never force us to seek Him out.. As for me, I can only continue to live by letting him carry me as I stumble and fall under the weight of my situation. He is my everything.. my sorrow and grief are too heavy to bear by myself and you are probably experiencing some of that yourself. He is with us and for us and wants us to come as His weary and broken people so He can shelter us from this storm.

God is our refuge and strength,
    an ever-present help in trouble.

 The Lord Almighty is with us;
    the God of Jacob is our fortress.

 He says, “Be still, and know that I am God..

(from Psalm 46)
   

 

 

 

Is He or isn’t He?

Why that question? Because it is the “the” question we have to ask ourselves every single day in one way or another. Is God sovereign…and is He good? Without resolving that we cannot keep following Him. In this season of my life I have to answer that question almost every day. ..as I see my husband deteriorating from a terrible disease. Could the Lord stop it? Of course . Is He going to ? No. 

As I read the testimonies of those who walk away there seems to be something that ties them together. Something awful happens.. some tragedy that they cannot explain and suddenly it seems that God is not who He says He is. I understand their reaction. Why doesn’t He just do something to end the suffering? Do I have an easy answer ? No I don’t. The only answer for me.. is to know His sovereignty is real.. that His ways are not ours that His thoughts are not ours. 

If I should decide that I know what God should do and He does not do it, then suddenly I am God and He is not. The only safe place for me as I lose Steve to dementia every single day is to put my hope in the goodness of God. To believe that He is for us and that somehow in a way I cannot comprehend He will bring good out of this. Honestly most of the time it is impossible to believe that except for His grace. The grace that is carrying me though each and every day.. every hour.. every minute of this impossible situation. 

He is who He says He is and He will always chase after us with His goodness even when we try to run away and hide. He pursues us to pour our His relentless love into our hearts..

I am writing this with a heavy heart.. please pray for Steve and I.

 

Our favorite beach.. the last one we went to together last summer.

 

Almost 18 Years

Next Monday is March 30th.. it is our 18th anniversary. I probably will not get in to the skilled nursing facility because of the ” shelter in place” rule.  It is sad but when I finally get to see Steve again I just know it will be a celebration. Since hospice became  involved in our lives.. things are better than they were. Steve is holding his own and in some ways improved because of the extra layer of help. I am doing better because I have other people who are monitoring his situation and will step in if he needs it. I actually did not realize that hospice can extend the life of people because they provide comfort care and extra attention which enables the patient to feel more love and less stress.

As I have been sheltering.. I feel like I am seeing new things in our situation. God’s timing has been miraculous. 7 months ago there was a big change that forced me into the situation where I had to put Steve in the hospital and then the skilled nursing. Just last month hospice became a part of our journey. The Lord knew what we would need at this stage. He knew this pandemic was coming and exactly when and where it would hit. He know that Steve was vulnerable and that I would not be able to visit him every day .. so last month he enabled hospice to come in and do the things I was doing.. He also knew that I would eventually need to find a place by myself.

I stayed with my daughter and family for 3 months and with old friends for 3 months..the second place is only 5 minutes from Steve’s . Now that he is being watched and cared for by hospice.. the Lord has provided a new place.. my own small place back in my hometown.. close to my daughter and only a few freeway exits away from Steve.. it seems to be just what I need.. and want. So here I am having plenty of time to sort through things and prepare for this move since I can’t really go anywhere.. sounds like God’s plan for sure.

So on our 18th anniversary I will be moving into my new place and hopefully, God willing, it will not be too long before I can visit my husband again.. God is directing our steps and taking care of both of us separately just as He did when we were together.. I am so very grateful.

I hope you are surviving this season without feeling too isolated or lonely and that you are having the time to see God at work in your circumstances.. God is still God.. He is still in control and you can still trust Him. He is Good .. so very Good!

I am reminded of this story in Matthew.. this is from the Message:

The Wind Ran Out of Breath

 Late that day he said to them, “Let’s go across to the other side.” They took him in the boat as he was. Other boats came along. A huge storm came up. Waves poured into the boat, threatening to sink it. And Jesus was in the stern, head on a pillow, sleeping! They roused him, saying, “Teacher, is it nothing to you that we’re going down?”

 Awake now, he told the wind to pipe down and said to the sea, “Quiet! Settle down!” The wind ran out of breath; the sea became smooth as glass. Jesus reprimanded the disciples: “Why are you such cowards? Don’t you have any faith at all?”

They were in absolute awe, staggered. “Who is this, anyway?” they asked. “Wind and sea at his beck and call!”

Let’s decide to be in absolute awe of Him as we sail through the storm that is upon us..Our great God!

Hospice

 

 

Yes.. they stepped into our lives last week.. at my request. Steve is declining rapidly. He can still walk around and eat and he tries to communicate. Most of it does not make sense. He is only partially here.. he is also very tired and weak and unfortunately a fall risk.

How do I feel? Very sad.. relieved that he will get extra help..ready but not ready.. accepting but not accepting all of this. It all happened too fast.. only 7 months ago we were taking our last walk on Drake’s beach.. now he can barely function. Today I talked with him and told him that I would be fine when he went to be with the Lord.. a lie that is necessary.. I hope he understood. I reminded him that he would see his parents and sister there.. He responded positively but it is difficult to know if he truly grasped what I was saying.. My selfish desires to hang on to him are finally gone.. he will be restored there and out of this life where his body and mind are both failing.

I am sharing this because I need to.. it becomes more real when I write about it and it is a very real part of our lives.. learning to let go and saying goodbye when their time is getting close. I sense the Lord being close to me but I am sad and lonely and afraid of the future. There are times when I just want to close my eyes and wake up to the life I have lost.. my husband, our home .. most of our belongings.. all gone..

So.. I continue to believe that God is good even though I don’t know if right now I can rely on Romans 8:28 to be true.. It always has been but nothing has challenged my faith like this trial.. I know I am not forsaken and not abandoned but the nights are long and the tears continue to flow ..

So.. I have opened my heart to those of you who read this.. I am not hiding and I am hoping it encourages you to be authentic and real and allow others into your pain. We were not created to suffer alone and I am so grateful for the family and friends that continue to support me and let me lean on them as this long trial unfolds.

He is faithful and He is good.. He will never forsake us and leave us to face all these things alone. His ways are not ours.. His thoughts are not ours.. We see through a glass darkly..trusting Him to reveal more in His time.

Help me to cling to you Lord..on this last leg of Steve’s journey .. to remember that you knew all this was going to happen before time began..

Christ be with me, Christ within me,
Christ behind me, Christ before me,
Christ beside me, Christ to win me,
Christ to comfort and restore me.
Christ beneath me, Christ above me,
Christ in quiet, Christ in danger,
Christ in hearts of all that love me,
Christ in mouth of friend and stranger.

Update on my life

Steve’s last trip to the beach .. last July.. the love of my life…

It  has been quite a while since I posted here.. I had some internet challenges and had to move for the second time in five months.. life is very hard for me and all I can do is try to live fully while the storm rages.. I feel like one of the disciples when they were in the boat with Jesus.. ” are you going to sleep and let me drown Lord?”.. at the same time I trust that He is at work and will continue to give me reasons to be here. My husband’s dementia is progressing and he is declining.. I see him every day and eat lunch with him .. feeding him yogurt and ice cream.. he loves both. Today I played music for him.. worship and a couple old hymns..he perked up and I know he remembered them.. we or rather I talked about Jesus reminding him and me that He is with us.

I was going through my old emails and I found one he wrote three and a half years ago.. it may have been the last one.. He was reminding me that the Lord was with us and He would take us all the way together.. exactly what is happening. Almost like he knew I would need that right now. God is in this and God has us and He is with us.. the pain is unbearable but we still have the love that the Lord has given us. This disease cannot separate us and eventually when He goes to be with the Lord.. I know that our love will survive into eternity.

For anyone who is suffering and in great pain .. I understand your journey and I only wish I could pray over you in person…

Lord, we are in a broken world and there is devastation everywhere. You are our sanctuary and our refuge in this dark place. We put our hope in you and trust you even as we struggle to believe.. strengthen us and encourage us and give us signs of your presence.. You will never fail us and we love you and will follow you as you lead us..Amen

 

 

 

 

 

Joy to the World!

 

“Joy is an act of resistance against despair and its forces”

The first two weeks of advent .. Hope and Peace lead us to the present week Joy.. we are no longer hoping and seeking peace instead we are ready to embrace joy.. to celebrate the joy of the Lord. Jesus was born into a dark and lonely world .. a world that needed Him more than it realized. The little baby born in the manager brought something amazing to us.. The joy of the Lord.. This joy is our stronghold in times of trouble .. it is our refuge when we are drowning in a sea of sorrow.. it is our hiding place and our sanctuary. Joy is available to us because of His unending love and His generous heart..We are His and because of that we can rejoice in our trials and suffering.. knowing that He is for us and with us.

We are in a season of anticipation.. of waiting.. as we draw near to that day when we celebrate the birth of Christ. He came into the world as a tiny helpless baby and yet He was God. He came to set the captives free.. to release the world from the bondage of sin and death. As He was born, the air was full of Joy.. the world began to breathe again.. Finally!

We can rest.. it is finished. The joy that flooded the world on that day is remembered every year at Christmas time. We hear the songs on the radio and in stores.. “Joy to the World” Even those who do not understand the depth of these words.. feel the joy and celebrate His birth. His spirit remains here with us.. to guide us and direct our steps. He fills us and walks with us as we trust Him. Christmas is an opportunity to remember this.. to be reminded of His faithfulness and His presence in our lives. He is our hope, our peace and our Joy..

 

I have told you these things so that you will be filled with my joy. Yes, your joy will overflow!”     ( John 15:11)

Upside down

 

It has been months since I last wrote on my blog.. I thought maybe I would give it  up.. but I see that people are still reading it so I am back. My world has turned upside down since I last posted. My husband’s disease suddenly worsened and he was hospitalized. He is now in skilled nursing.. all of this started on the day after Labor day so it has been almost two months. I had to move quickly and I am now staying with my daughter. She and her husband were gracious enough to take me in and let me be here until the next step is clear.

Everything is unclear.. my husband is still here but eventually this disease will take his life and I will be a widow again.. The first time was 20 years ago. Everything is different this time.. Steve and I are having a sweet season right now.. I am able to help out with his care and show him that my love is just as strong as ever.. He is able to smile and tell me he loves me.. even though he is confused and disabled now.. He remembers me and he remembers us. We still look into each other’s eyes and I continue to look forward to each day that I have on this earth with him.

Dementia is a terrible disease and it should not have the right to take the life of someone so young.. it is so hard on the person who has it and terrible on those who love that person. Sometimes I just can’t imagine that the Lord is allowing this and yet I know deep down that he has purposes that are totally mysterious in all that is happening. I am grieving for the life we had together.. knowing it will never return. I miss us.. our home, our lives our dreams. I look ahead the road is empty.. no more dreams for me.. only the hope that God will not waste this suffering.. that He will use me to bring comfort to those who will go through this and need understanding.. He is teaching me what grief feels like that is daily.. anticipatory grief.. ambivalent grief.. grief that rises up and attacks me at night.. grief that hides it’s face and suddenly tries to drown me.

A while back I started writing poems.. I never even liked poetry but they seemed to come out of the darkness and sadness.. from somewhere deep inside me.  Here is the most recent one:

The Eye of the Storm

It is totally dark

the winds blow all around me

There is no future

No light

Only a deep darkness

I am alone

sad, lonely, waiting

The road ahead is empty

He is here with me, yet I 

feel like I am falling

Keep me close to you Jesus

 

My memories of our life together are like sweet soft pillows that I lie on at night when the sadness comes.. the trips we took.. the dinners we ate.. the drives we went on.. the sweetness of our love.. nothing can take that away.

Our God is with us as we continue to trust Him through all of this.. He will never abandon or forsake us.. we are His.

Surprises in the dark

This is us in Maui 7 years ago.. a wonderful memory!

 

Dear Readers,

If you have been following my blog you know that I write about the struggles of this life.. disappointment.. grief and loss.. disillusionment etc. I feel like there is a need for that type of transparency and sharing. However.. there is more than just acknowledging the trials and the pain we face. In the midst of these trials, God promises to show up.. to reveal Himself to rescue us and to renew us.  This was a week when God showed up in my life in a very surprising way.

As you know, my husband is suffering from a type of dementia and we have been grappling with what that means for the last year.. since he was diagnosed. A couple of months ago I decided to take our wedding movie to Costco to have it put on a DVD. We have never seen this movie since it was shot with a super 8 camera with no way to view it.. time to do something about this. I wanted to make sure that we watched it together now..in case Steve is unable to take it in later.. but at the same time I felt like I was going to lose it when I saw how things used to be. We have been married for 17 years and both of us are very different from the way we were on that day.

It seemed as though the Lord and Steve wanted to see it.. so I just hoped that I could recover after it was over. God surprised me.. not only did I recover, but I was totally encouraged as I watched and also amazed. The important moments were all there.. views of the guests.. many of them are with the Lord now.. including my Dad and Steve’s sister. It was wonderful to see them again and to remember them.. Then there were the vows.. showing the close up of my face and I saw the joy that God gave me as I married this wonderful man and promised to be faithful to him no matter what happened.. in sickness and in health. Wow.. so thankful that I made those vows and that God is giving me the strength to keep them. The pastor gave a sermon on 1 Corinthians 13.. the love chapter. It was a prophetic word for us.. emphasizing that love was to be at the center of our relationship.. It was as though the Lord knew we needed to file that away and keep it for this season. So awesome to realize that He knew what we would face and that we would walk it out together. I was strengthened by the words of the pastor as he told us that he could see God’s handiwork in our relationship.. it was confirmation to me that nothing that is happening is a surprise to God.. He knew what we would walk through and that we would cling to Him and each other.

Yes! It was a surprise in a dark time and it came in a surprising way.. I cried and longed to relive those early years of our marriage.. but these years matter too and I want to live fully as they unfold.

I just had to share this with you.. I hope it brings life and hope to your heart!

Love,

Alicia