Tag Archive | Dementia

Sweet Sorrow

 

It has been a week since my wonderful husband fell into the arms of Jesus. I miss him every minute of every day but I am so thankful the struggle and suffering are over. This grief that surrounds me now is a sweet sorrow. We had a very good marriage and I never doubted for a minute that the Lord put us together. He was the first person to show me the unconditional love that I needed to experience to truly understand the Father’s love and be able to receive it. What a gift. I always think of him as the balm of Gilead on all the wounds I received before I met him.

Steve was a man of few words, but when he spoke.. he said something worth saying. I learned what the phrase ” action speaks louder than words” really means from this man. He loved me deeply and showered me with that love even when I knew I did not deserve it. I adored him and thankfully because I was widowed 21 years ago, I never let him forget that I loved him and checked in regularly to make sure he knew it. It is too late once someone is gone ..

When Steve began to get sick the first thing to go was language.. the one thing that he struggled with all his life. As time went on the dementia slowly progressed and robbed him of everything until at the end he was bedridden and unable to do anything for himself. It is a ruthless disease. He went into the hospital in early Sept of 2019 and then a month later was admitted to skilled nursing.

This last year was  so challenging for both of us , but in the midst of it I saw God move over and over on our behalf. He was placed in the best skilled nursing in the county.. close to where I lived with the most caring people you could ever hope to meet. I went to see him every day for months until Covid struck our country. I  continually prayed that he would know me .. many people don’t remember their loved ones. As long as he was able to communicate at all. I would tell him I loved him and he would tell me he loved me. He never forgot me and was always glad to see me even when he became very disabled. Many believers came through this life as his journey progressed. I was locked out of the facility for 2 months and suddenly with no real explanation they let me back in.. I was the only person I knew in Marin who was able to visit someone in skilled nursing.

I spent as much time as I could over the last 4 months just being with him.. playing music.. praying and reading to him. It was a privilege to be in there and to walk with him to the end. I had Hospice support for 6 months,, but because of Covid they were locked out.. three wonderful workers talked with me each week on the phone and helped me survive.. it was a lonely road.. The grief of the last year was complicated.. I wanted it to end so he would not suffer… but wanted him to live as long as possible.. the only thing I could do was pray and tell the Lord that it was up to Him and not me.. and that I would give to Steve until he was released from this world and went to be with the Lord. He died peacefully and I had a vision of the angels coming for him  the morning he passed on.. God has provided for me in every way during this trial and continues to provide each and every day as I lean on Him for strength and courage to continue.

Thank you for reading my story and I pray that the Lord uses this to build your faith and helps you as your trust Him.

Update on my life

Steve’s last trip to the beach .. last July.. the love of my life…

It  has been quite a while since I posted here.. I had some internet challenges and had to move for the second time in five months.. life is very hard for me and all I can do is try to live fully while the storm rages.. I feel like one of the disciples when they were in the boat with Jesus.. ” are you going to sleep and let me drown Lord?”.. at the same time I trust that He is at work and will continue to give me reasons to be here. My husband’s dementia is progressing and he is declining.. I see him every day and eat lunch with him .. feeding him yogurt and ice cream.. he loves both. Today I played music for him.. worship and a couple old hymns..he perked up and I know he remembered them.. we or rather I talked about Jesus reminding him and me that He is with us.

I was going through my old emails and I found one he wrote three and a half years ago.. it may have been the last one.. He was reminding me that the Lord was with us and He would take us all the way together.. exactly what is happening. Almost like he knew I would need that right now. God is in this and God has us and He is with us.. the pain is unbearable but we still have the love that the Lord has given us. This disease cannot separate us and eventually when He goes to be with the Lord.. I know that our love will survive into eternity.

For anyone who is suffering and in great pain .. I understand your journey and I only wish I could pray over you in person…

Lord, we are in a broken world and there is devastation everywhere. You are our sanctuary and our refuge in this dark place. We put our hope in you and trust you even as we struggle to believe.. strengthen us and encourage us and give us signs of your presence.. You will never fail us and we love you and will follow you as you lead us..Amen