2021.. so far

If you have been reading my blog for any length of time you know that I often write about grief and loss. And you probably know that my husband passed last August. He had early onset dementia. My season is tough right now. Steve is gone and I miss him every single day. He was the love of my life and my soul mate. No one can take his place in my heart.

At the end of March it will be 7 months since he went to be with the Lord.. March 30th would have been our 19th anniversary and April 14th would be 20 years since we met.. He will not be here to celebrate those dates with me.. that is incredibly hard.. I wanted to grow old with him.. I am definitely growing old but without him.

The grief is still very fresh but it is different than it was 3 months ago.. I think I have grown used to it. It is less intense but still knocks me to the ground regularly.. I get up a little more easily.. I’ve had a lot of practice now. This blog post was inspired by some reading I have been doing on grief and how best to help grievers. I feel as though most people have no idea what grieving people need and that is not really their fault. We live in a culture that denies loss and death and worships youth. In the midst of that culture people are facing loss and death every day.

What do you think when you hear about the mass murders that just happened in our country? I know.. it is scary and sad and awful. What about the families that lost loved ones? Once the headlines go away.. they are supposed to go back to their ” normal” lives. They will never do that. Life does not go back to normal when there is that type of loss. My life is never going to be normal again.. and neither will yours when you experience the loss of loved ones.

My passion is to educate people on this topic because grief and loss are real. Denial does not wipe them out. What do grievers need? Not advice .. not scripture band aids.. not platitudes.. They need compassion and understanding. They need someone to be with them in their grief.. to listen.. to cry with them.. to talk about the loved one who is missing. They need to know that those around them remember that person and are not afraid to bring up their names or to ask questions. They need others to realize that their reality is totally different now.. When you are grieving you are not the same as you were before the loss and you will continue to change as you grieve.

People do not get over grief.. they learn to live with it. They join a club they never knew existed.. the club is filled with those who have loved and lost. It is real and everyone eventually joins. As for me, my life has been filled with loss. I have been widowed twice and lost many friends and relatives. I have learned to grieve fully so I don’t end up self- medicating because I am stuffing my feelings. As a friend of someone who is grieving.. you can help them heal by being present with them in this process. I want to encourage you to do that. Don’t be afraid of it.. it is not contagious and you are not going to make a mistake. The biggest mistake you can make is to shy away from someone who is hurting.

I am fortunate to have friends and family who are not afraid of my pain. People who understand and listen. God has blessed me in this season. My hope is that I will continue to be there for those people who will face the impossible. I don’t have answers for them.. I can only reach out to say that God is with them and that He loves them and will take care of them.. because He is doing that for me.. each and every day.

The Lord knows our pain.

“Jesus wept”

The Veil

I woke up thinking about this journey and how hard it is.. my usual morning thoughts. I knew Steve was going to die and I tried to prepare myself for the day when I would lose him. Of course that is impossible. We cannot be prepared for the death of someone we love no matter how hard we may try.. once they are gone the waves of grief sweep over us and we can only hang on and wait for the next one.

He is gone..yes I know where he is.. but that does not always help. I thought of the wall that divides us from our loved ones once they move out of this world. It is so hard.. we know they are there, but we cannot see over that wall or climb over it or see through it.. It feels like they are within our reach but that wall stands in the way..

I try to talk with him and tell him things.. wondering if he can hear me .. trying desperately to imagine that he is able to know what is happening to me. My heart aches to hear his voice and at times I hear it in my head.. telling me not to worry or be fearful.. reminding me that I can continue without him.. it helps and it doesn’t. I want to tear down that veil and run into his arms.. to tell him that I love him and that I miss him.. my heart breaks into a million pieces.. I gather them up and keep going.

This is grief my friends.. it is real and it is hard and we were never created to be able to endure it alone. I am so thankful for my friends and family .. for those who support me and help me keep his memory alive. I am most thankful for the Lord.. the God who carries me through each day.. even the days when I tell Him I hate Him and all He does is wait patiently so He can love me again.. He picks me up off the floor and tells me to rest.. to let him restore me.. to let Him bring healing to me in the midst of the darkness.. He is with me and for me and I know this.. I can run from Him but there is no where to go.. I try to blame Him but I know that this death is a result of our broken world and not punishment from Him.. He is good.

He has Steve now ..He loved him so much that He rescued him .. he is reunited with those who went before him.. released from the suffering and the pain.. safely home.

“He will wipe every tear from their eyes. There will be no more death or mourning or crying or pain, for the old order of things has passed away.”

Sweet Sorrow

 

It has been a week since my wonderful husband fell into the arms of Jesus. I miss him every minute of every day but I am so thankful the struggle and suffering are over. This grief that surrounds me now is a sweet sorrow. We had a very good marriage and I never doubted for a minute that the Lord put us together. He was the first person to show me the unconditional love that I needed to experience to truly understand the Father’s love and be able to receive it. What a gift. I always think of him as the balm of Gilead on all the wounds I received before I met him.

Steve was a man of few words, but when he spoke.. he said something worth saying. I learned what the phrase ” action speaks louder than words” really means from this man. He loved me deeply and showered me with that love even when I knew I did not deserve it. I adored him and thankfully because I was widowed 21 years ago, I never let him forget that I loved him and checked in regularly to make sure he knew it. It is too late once someone is gone ..

When Steve began to get sick the first thing to go was language.. the one thing that he struggled with all his life. As time went on the dementia slowly progressed and robbed him of everything until at the end he was bedridden and unable to do anything for himself. It is a ruthless disease. He went into the hospital in early Sept of 2019 and then a month later was admitted to skilled nursing.

This last year was  so challenging for both of us , but in the midst of it I saw God move over and over on our behalf. He was placed in the best skilled nursing in the county.. close to where I lived with the most caring people you could ever hope to meet. I went to see him every day for months until Covid struck our country. I  continually prayed that he would know me .. many people don’t remember their loved ones. As long as he was able to communicate at all. I would tell him I loved him and he would tell me he loved me. He never forgot me and was always glad to see me even when he became very disabled. Many believers came through this life as his journey progressed. I was locked out of the facility for 2 months and suddenly with no real explanation they let me back in.. I was the only person I knew in Marin who was able to visit someone in skilled nursing.

I spent as much time as I could over the last 4 months just being with him.. playing music.. praying and reading to him. It was a privilege to be in there and to walk with him to the end. I had Hospice support for 6 months,, but because of Covid they were locked out.. three wonderful workers talked with me each week on the phone and helped me survive.. it was a lonely road.. The grief of the last year was complicated.. I wanted it to end so he would not suffer… but wanted him to live as long as possible.. the only thing I could do was pray and tell the Lord that it was up to Him and not me.. and that I would give to Steve until he was released from this world and went to be with the Lord. He died peacefully and I had a vision of the angels coming for him  the morning he passed on.. God has provided for me in every way during this trial and continues to provide each and every day as I lean on Him for strength and courage to continue.

Thank you for reading my story and I pray that the Lord uses this to build your faith and helps you as your trust Him.

Hospice

 

 

Yes.. they stepped into our lives last week.. at my request. Steve is declining rapidly. He can still walk around and eat and he tries to communicate. Most of it does not make sense. He is only partially here.. he is also very tired and weak and unfortunately a fall risk.

How do I feel? Very sad.. relieved that he will get extra help..ready but not ready.. accepting but not accepting all of this. It all happened too fast.. only 7 months ago we were taking our last walk on Drake’s beach.. now he can barely function. Today I talked with him and told him that I would be fine when he went to be with the Lord.. a lie that is necessary.. I hope he understood. I reminded him that he would see his parents and sister there.. He responded positively but it is difficult to know if he truly grasped what I was saying.. My selfish desires to hang on to him are finally gone.. he will be restored there and out of this life where his body and mind are both failing.

I am sharing this because I need to.. it becomes more real when I write about it and it is a very real part of our lives.. learning to let go and saying goodbye when their time is getting close. I sense the Lord being close to me but I am sad and lonely and afraid of the future. There are times when I just want to close my eyes and wake up to the life I have lost.. my husband, our home .. most of our belongings.. all gone..

So.. I continue to believe that God is good even though I don’t know if right now I can rely on Romans 8:28 to be true.. It always has been but nothing has challenged my faith like this trial.. I know I am not forsaken and not abandoned but the nights are long and the tears continue to flow ..

So.. I have opened my heart to those of you who read this.. I am not hiding and I am hoping it encourages you to be authentic and real and allow others into your pain. We were not created to suffer alone and I am so grateful for the family and friends that continue to support me and let me lean on them as this long trial unfolds.

He is faithful and He is good.. He will never forsake us and leave us to face all these things alone. His ways are not ours.. His thoughts are not ours.. We see through a glass darkly..trusting Him to reveal more in His time.

Help me to cling to you Lord..on this last leg of Steve’s journey .. to remember that you knew all this was going to happen before time began..

Christ be with me, Christ within me,
Christ behind me, Christ before me,
Christ beside me, Christ to win me,
Christ to comfort and restore me.
Christ beneath me, Christ above me,
Christ in quiet, Christ in danger,
Christ in hearts of all that love me,
Christ in mouth of friend and stranger.

A year ago

Last spring I wrote about my mom and how she suffered a femur fracture that changed everything for her and for me. It is hard to believe that a year has passed..she is still with us..unable to walk..and in a wheelchair..almost blind. I grapple with all the feelings that her life triggers in me. I don’t want to end up like her..my own mortality is always before me..the aging process is more real than it ever was. I wonder how long she will hang on.

We don’t face death in our culture..we avoid it and we run from it. We act like it won’t happen to us or to anyone we love..and then it does. No one can escape the inevitability of it all. We were not created  to embrace it..it is terribly painful and our hearts break..we never get used to the idea of it..we are all afraid..even if we live in denial. I’m sure that Mom is afraid but she won’t talk about it..it is still too hard..even at 89. As for me..I’ve been close to it many times..no, I am not used to it either. The only thing that stands between me and all that fear of the unknown is the certainty of God. I won’t be alone..He will be with me..and with you and with my mom.

Are you afraid? Is your heart weighed down by things that you cannot control? Is someone close to you suffering? Are you? I don’t have all the answers for you..no one does. Our hope has to be in the sovereignty of our God.. In His goodness..His amazing faithfulness..His life in us..His promises and His grace. He is reaching out to us and promising to take us all the way to the end of our lives here and into the new place He has prepared for us.

“He will wipe away every tear from their eyes, and there will be no more death or sorrow or crying or pain. All these things are gone forever.”